University of Minnesota
School of Physics & Astronomy

Physics and Astronomy Calendar

Friday, January 22nd 2016
Speaker: Susan Wolf, University of Minnesota Law School
Subject: Precision Medicine & the Challenge of Sharing Genomic Results
Refreshments served at 3:15 p.m.

In January 2015, President Obama announced plans to fund a nationwide Precision Medicine Initiative (PMI). A year later, plans are under way to assemble a large and diverse cohort of 1 million participants to build a prospective research resource to fuel population-wide research. The PMI aims to use a new model of research driven by highly engaged patients actively partnering in data collection and having broad access to their own results as well as the cohort’s aggregate results. However, there remain big questions about this ambitious plan for return of results. For the last decade, the research community has actively investigated and debated those questions. Among them is how to determine what results are sufficiently understood to return, whether individuals should have access to uncertain results, and whether family members should be able to obtain a loved one’s genetic results that may have implications for relatives. These questions raise pressing issues in ethics, law, biomedical science, and clinical care.

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